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Dan Moricoli
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  • Wellington, FL
  • United States
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this is hard for me to understand..i wouls like to know if there are any doctors in upstate ny 30mi so of albany that treat cfs
yesterday
Comment by linda rowe..Dec 23rd 2009...i read all of the comments on this page..it seems like everyone i can relate to...i was strong and smart..now i feel awful and stupid..all the time...family and friends dont understand..my own husband dosnt..i…
yesterday
Thank you dear Sue for sharing so courageously. Feel free to also contribute in the " Rising Up group" found on the main page .On the right side of the page is our blue Rising Up logo. Many blessings of peace and healing to you, Paula Hayward :)
yesterday
hi sheila in australia a nickname for a woman especially in the outback is sheila thus the saying shes a sheila with a sense of humour thats you on a serious note the alarm bells go of when you and female corresponders talk about make up and lipstic…
yesterday
 

Welcome!

About me . . .and this website.

I have had ME/CFS since May, 2006 when I had a sudden onset of the disease following a bout of stomach flu. My symptoms have changed considerably during the course of my illness. I consider myself lucky in that my "crashes", while they now occur almost daily, most often only last just a few hours. During these periods I completely loose my physical and cognitive abilities and can only lie down and wait for the episode to pass.

What little energy I possess is very easily exhausted. Virtually any physical exertion or mental stress will trigger a reaction which, if it does not trigger a total crash, will cause my speech to become slurred and I will have difficulty finding and vocalizing words. I will also become very "wobbly" on my feet and then need a cane to get around.

One can get some idea of the impact of my affliction with ME/CFS in one of my "wobbly" periods HERE.

Like almost everyone else with ME/CFS, I struggled with physicians and numerous other medical providers who insisted that "it was all in my head" for over two years before I was fortunate enough to be able to see Dr. Benjamin Natelson, M.D.

Dr. Natelson has guided me towards a significant reduction in my symptoms and greater optimism about my future prospects. If you have not yet done so, please read his book Your Symptoms are Real. You can buy it HERE for as little as $1.31.

A fortuitous meeting with Dr. Herbert Hyman, M.D. in the summer of 2008 got me thinking about the possibility of developing a website. Subsequent meetings with him as well as Marly Silverman of P.A.N.D.O.R.A. and Dr. Kenneth Friedman of the University of New Jersey School of Medicine led me to the development of cfsKnowledgeCenter.com and the ME-CFSCommunity. Each of these three continue to serve on the Board of Advisors of cfsKnowledgeCenter, Inc., a Florida Not for Profit 501 c3 corporation.

My investment in this work has reached well into five figures and I have no more to give. Little can be done now without your assistance. There is no benefactor or foundation supporting us. Our ability to survive now rests with you and the other members of the community.

I invite you to think about the importance of this site to you and ask that you please consider supporting it with a donation commensurate to its value to you. A click on the icon below and a willingness to part with a few dollars, euros or pounds sterling to help yourself and others is all it takes.


Lastly, please let us know what you like, or dislike, about the site as well as any ideas you might have for its development. You can do so by emailing your comments and suggestions to: editorial@cfsKnowledgeCenter.com

I keep thinking about when I will be well enough to go back to fly fishing . . .

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At 10:56am on December 23, 2009, Toby Vokal said…
Hi,

I have had ME/CFS for over 14 years. I hope the XMRV discovery is the answer that we have all been waiting for.
At 8:09am on December 21, 2009, Carol Kaye said…
Hi Dan, Thank you for the nice welcome. I know I'll enjoy being part of a community that is so wide ranging in knowledge.
Carol
At 8:24pm on December 20, 2009, James M. Ross, PhD said…
Been disabled and mostly housebound with this illness for over sixteen years. A blog has been recommended to me before but I was not aware of any--just fell into this one after watching the Klimas videos which I think you posted. Thanks for this work. Pretty low energy right now so my thank you will have to do for how.
-Jim
At 11:44pm on December 19, 2009, Suella said…
May I recommend the wonderful site of Bruce Campbell's www.cfidsselfhelp.org which has given me skills in Self-Management of this awful disease. I have so benefited from his classes that I have gone from nearly bed bound to back at college part time. I still have CFS and have to be very careful about how I spend me limited energy, but am so grateful to be able to both control and improve my health through my actions.

There are many free articles on this not-for-profit site which are from recovering CFS patients. The courses are paid ones but at *very* low cost and include an extremely helpful book on Self Management of CFS.

As part of the courses there are small on-going discussion groups whcih focus on setting self-management targets that encourage us in improving our healthy behaviours. I feel that they have given me the gift of living my life again, and I have been slowly regaining my health and strength at 1% a month.
I really can't recommend this site highly enough.
At 11:31pm on December 19, 2009, Suella said…
Thank you so much for this site and sharing the various videos with us. I am retired and on a lo pension so have not a lot to give but will certainly make a donation.

Your videos have indspired me to talk to my English NHS GP about the XMRV virus, as I was bitten by a mouse around the time I developed my CFS/ME.

Again,
Thank you so much for this very helpful site.

Bless you,

Suella Postles
At 5:01am on December 19, 2009, susan foster said…
hi dan that sounds a great help if you could put word out like i said i run a group at rotherham and people can ring or email me i have had letters sent to doctors surgerys in my area and am on the nhs site at rotherham and me ass web site i think over in england needs a site like this .but like i said am would do my best but would be better with more pople to help i only started useing computa about a year ago and a lot ove time been too ill to get going it would be so good for people to get to no that there is some were closer to home were people can get to grther and support each other and when i do get on the tv i think there will be a lot ove people suffering not knowing which way to turn i dont no if you have looked at my story every thing happens for a reason on my page i belive i have allways helped people all my life .i think i got this illness like most people on hear through working too hard and helping others first but thats not a bad thing thanks Dan i hope with all my heart we can get some thing going
At 3:44pm on December 18, 2009, susan foster said…
hi dan as can see am not too good on the computa yet but i would like to find out what i have to go about setting a group up for Brithish people i would like to know how to go about it there is no support inmy area Rotherham i run a group at Rotherham were people can ring me if am pooly they can leave a message all so pen palls i dont want people tohave to go through what i went through with hospital when i get a little stronger am going on tv to let people no .just how wrong people can be thanks dan
At 12:19pm on December 18, 2009, geoffrey keith brown said…
hi dan when you get a chance simlify all this political stuff you have got going over there its to hard to follow from here
australians just know we have a group of imposters at the top and only for your web site i would be still wallowing in there negativety cheers geoff
At 7:10am on December 18, 2009, Wendy Wilkinson said…
Thank you!
At 5:50am on December 18, 2009, robin skinner said…
Thank you so much for the sweet welcome.Its been a difficult Road for all of us in some kind of way. I dont know much about these ilnesses but I would like to learn more and support my CFS/ME/FM brpthers and sisters
 
 
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