ME-CFSCommunity.com

About Us

The ME-CFSCommunity is a creation of cfsKnowledgeCenter, Inc., a member supported, Not for Profit, 501 (c) 3 organization.

Our members may come from many countries but we are united in our determination to learn from, and to assist, one another in moving beyond the obstacles imposed upon us by our illness.

Our Membership Spans the Globe


Our members reside in:
Algeria, Antigua and Barbuda, Argentina, Armenia, Australia, Austria, Bahamas, Belgium, Belize, Brazil, Bulgaria, Canada, Cayman Islands, China, Christmas Island, Columbia, Czech Republic, Denmark, Egypt, Finland, France, Germany, GreeceGreenland, Iceland, India, Indonesia, Ireland, Iran, Israel, Italy, Jamaica, Japan, Kenya, Lithuania, Malta, Malaysia, Mexico, Myanmar, Netherlands, New Zealand, Nicaragua, Northern Ireland, Norway, Pakistan, Philippines, Poland, Portugal, Puerto Rico, Romania, Russian Federation, Singapore, Slovakia, South Africa, Spain, Sweden, Switzerland, Taiwan, Thailand, Turkey, Ukraine, United Kingdom, United States and Venezuela.

Members

Latest Activity

April Lesniewski replied to April Lesniewski's discussion CFS newbie here!
"Thank you so much Rob for fighting through your headache to respond to me.  It is hard being new...I am sure alot of people remember what it is like to have to start that first page or comment.  I have endured the financial hardship…"
51 minutes ago
Nancy Blake replied to Nancy Blake's discussion Further to my January comments on exercise and blood viscosity.
"Hi, Suella First of all, let me put in a quote from Byron Hyde, which can be found at www.hfme.org/misdiagnosis: Quote from the hfme.org/misdiagnosis website:   For the benefit of all of the patient groups involved, doctors must return to the…"
7 hours ago
Suella Postles replied to Nancy Blake's discussion Further to my January comments on exercise and blood viscosity.
"Nancy, I don't understand the comment on deconditioning. I certainly have lost a great deal of fitness and have to take things quite steadily. I feel that my stamina is definitely impaired, although I can walk steadily for a mile with seated…"
9 hours ago
Nancy Blake posted a discussion

Further to my January comments on exercise and blood viscosity.

his is a preview of what your discussion will look like when you publish it. Go back to the discussion to publish or edit it.  This looks weird, but I couldn't find any way to respond to that suggestion - how do you go back to the discussion to publish or edit it?Further to my January comments on exercise and blood viscosity!Posted by Nancy Blake…See More
19 hours ago
Suella Postles replied to Rachel's discussion Crazy Cures
"It is nice to see that there has been a recent study of Ashok Gupta's amygdala retraining technique has indicated good improvement,  albeit with support to the patients. The visualizations and stopping techniques I have found make a great…"
23 hours ago
hopingforhealing replied to Linda Carrington's discussion Genetic Testing
"@ Muriel, What an interesting article!  I have often wondered if I had a specific mitochondrial disorder, but thought that it couldn't be that because it didn't seem like I was born with it.  But suppose it (ME/CFS) is more of…"
yesterday
Cort posted blog posts
yesterday
Burnadett updated their profile
yesterday
Kathy updated their profile
yesterday
Terri Yates was featured
yesterday
ian knott replied to ian knott's discussion doctors ignorance
"no i didnt mean it funny ever if there was spell check ide use it ."
Friday
Lisa Forstenius posted a discussion

ME/CFS associations in other countries

Hi,I am a new member in the ME-CFS Community. Looking forward to reading the different discussions and informational posts.I have had ME/CFS for many years (since I was a child) and am currently chair for the Swedish ME/CFS association. We have almost 1.000 members.I am planning to go to Taiwan in the autumn and would, if possible, like to get in touch with ME/CFS patients there. Does anyone in the ME-CFS Community know if there is an ME/CFS association in Taiwan?Grateful for any information or…See More
Friday
Roveta replied to ian knott's discussion doctors ignorance
"The spelling reference was about me.  I sit with a dictionary when I write.  Between Brain Fog, changing eye sight, typos etc.  All of us forgive others and ourselves.  Most of the time I'ld rather be sleeping.  We are…"
Thursday
ian knott replied to ian knott's discussion doctors ignorance
"i know my spelling rubbish thats why i dont normaly go on sites"
Thursday
Roveta replied to ian knott's discussion doctors ignorance
"Get another GP.  Even the most knowledgeable can only treat symptoms.  I wish they had a spell checker on this site."
Thursday
ian knott replied to ian knott's discussion doctors ignorance
"thanks for the reply ive been diagnosed for 8 years .its the gp just dont want to help . its like banging my head against a brick wall"
Thursday
 

Welcome . . .

Should you only be interested in learning about severe fatigue, chronic fatigue syndrome (ME/CFS) or fibromyalgia we invite you to visit: www.cfsknowledgecenter.com. It is an open access website.

The ME-CFSCommunity is reserved for those individuals who wish to learn from, and directly communicate with those who are afflicted with ME/CFS. Access to the various sections and features of the ME-CFSCommunity beyond the Main Page is limited to registered members only to protect their privacy. 

Our mission is to help members move beyond the obstacles imposed upon them. We seek to facilitate the free and open exchange of information on ME/CFS, fibromyalgia and related illnesses among those who know the most about the true impact of these afflictions.

Members easily communicate with one another individually, or in groups using FREE Live Video Chat, Instant Text Messaging, Blogs and Forums as well as other features. 

Membership is FREE and PRIVATE. Our member roster is held in the strictest confidence. It is not shared with any other organization nor used for any commercial purpose. 

You are welcome to join us. You'll find us warm and welcoming. Our community interesting, informative and supporting.


Check out InTheNews for daily updates on the latest medical news releases and other news items which may be of particular interest to the community.

 

 

 

 

"Yoga & ME/CFS: On the Path Towards Wellness"

The new video series is now in development, production is being scheduled and is expected to begin within 30 days.

While our initial funding goal of $1500 has been met and we can actually start a "shoe string" production, the degree to which we can continue to raise funds for the project will help increase the production values of the series and it's availability for DVD distribution for in-home use,

If you'd like to help, please consider a donation of as $5, or more as your circumstances allow, please click on the PayPal logo or link below.

Alternatively, you may send a personal check or money order to: cfsKnowledgeCenter, Post Office Box1611, Loxahatchee, FL 33470, USA.

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=7561374

 


Noted expert, Dr. Kenneth J. Friedman, discusses various aspects of ME/CFS in very clear and direct terms in this unique series of video created by cfsKnowledgeCenter. View all of them in our Video section.  Download them from our Facebook page or from our YouTube page.


Kenneth Friedman, Ph.D., is a member of the Board of Directors of the IACFS/ME, Associate Professor of Pharmacology and Physiology, New Jersey Medical School (retired) and a member of the Board of Advisors of cfsKnowledgeCenter.

We've re-organized our Continuing News Stories by giving each of the following articles their own page. You'll find the links to each within the InTheNews section as well as those immediately shown below.

Clear insights and actionable information from widely recognized authorities are the hallmarks of the Expert Assistance series of videos produced specifically for those afflicted with ME/CFS and related illnesses.

The entire Expert Assistance video series is now available AT NO CHARGE.

View them as many times as you like. Tell your friends, and physician, about them. Both patients and medical professionals will find them an excellent, and frequently referenced, source of valuable information.

When viewing the series, we hope you will also take a moment to consider their value to your pocketbook as well as your path towards wellness. We hope that you will respond in kind and support this effort to provide you with Expert Assistance with a contribution to keep the community up and running and able to continue to produce these ground breaking videos for you.

Please sign a petition to the Minister of Health of Canada to Fund research for patients with myalgic encephalomyelitis whether a resident of Canada or not. Link to sign or click on flag above.

 

The ME/CFS & FM Patient Survey is a blind (names withheld) research study to gather data from around the world from those afflicted with ME/CFS & FM to further research into the disease. Everyone who is afflicted with ME/CFS or FM is encouraged to take the survey.

Over 450 people have completed the study thus far. Have You? It's important that we assist the research on ME/CFS in every way we can. Please help, it takes just a few minutes of your time.
Learn more about and take the ME/CFS & FM Patient Survey


The ME/CFS Case Definition Survey is a standardized guide for clinicians and research scientists for the evaluation of the impact of various specific symptoms upon those afflicted. It is presented in conjunction with the ME/CFS research team at the University of Miami.

Dr Nancy Klimas is delighted that so far over 675 people from around the world have taken the survey. Won't you please join them?


Learn more about and take the Case Definition Survey


If you are a current or former resident of the UK who has dealt with the UK medical system, please help us to gather the data needed to work for change. To take the survey please go to the UK Group.

 

Got a question about ME/CFS? Be sure to Ask Dr Hyman.

 

Please take a minute to stop by the Store. We have a few items with which you where you can support the programs and services of the ME-CFSCommunity and make a statement about your own battle with ME/CFS.

 

Then, If you care to grab a cuppa coffee or tea and read a bit, or better yet, meet new friends and chat awhile . . . try our instant messaging Chat Room below or better yet, the Video Chat room where up to six people at a time from anywhere in the world can meet and talk in real time.

 

Contributions are sorely needed to support this website. There is no benefactor or foundation supporting us. Our ability to survive rests with the individual members of the community.

Won't you please Help Us to Help You?

A click on the PayPal icon below and a willingness to help yourself and others is all it takes. Those who prefer not to make payments online may send a personal check or money order to cfsKnowledgeCenter, Post Office Box 1611, Loxahatchee, FL 33470, USA.

 

Top of Form

Chat

Active Conversations

Disconnected (2 online)

    Disconnected

    You are disconnected from chat. Connect to join the chat.

    Suspended From Chat

    Sign up to chat on ME-CFSCommunity.com.

    Sign Up

    Forum

    Best Community 2 Replies

    Started by BETHANY YAGCI in General Discussion. Last reply by Debra Colorio Feb 8.

    dating ME/CFS 110 Replies

    Started by Sarah G in Personal Relationships & ME/CFS. Last reply by ian knott on Thursday.

    Spirituality and Illness 134 Replies

    Started by Dan Moricoli in General Discussion. Last reply by Pink Rose Dec 5, 2011.

    Caregivers 50 Replies

    Started by Dan Moricoli in General Discussion. Last reply by leah sims Feb 17.

    Thankfulness 98 Replies

    Started by Rachel in General Discussion. Last reply by Amy Oct 16, 2011.

    Blog Posts

    Comment on Mikovits and the Fallout From Fatigue Syndrome Retraction Is Wide in the New York Times

    From The New York Times

    .

    Fallout From Fatigue Syndrome Retraction Is Wide

    By DAVID TULLER

          

    When scientists reported in 2009 that a little-known mouse retrovirus was present in a large number of people with chronic fatigue syndrome, suggesting a possible cause of the condition, the news made international…

    Continue

    Posted by Moderator on February 7, 2012 at 5:00am — 1 Comment

    Win An HP Laptop Computer

    Win An HP Laptop Computer

    A four year old used, but very serviceable, laptop computer is being given away.

    The fully functional computer is a Hewlett Packard DV6000 laptop with a Microsoft XP operating system. It is the personal property of Dan Moricoli since new and is in excellent condition.

    Installed programs include the Microsoft Office Suite including; Word, Excel, Outlook…

    Continue

    Posted by Moderator on February 4, 2012 at 9:30am — 1 Comment

    Lawsuit claims Harvey Whittemore embezzled millions of dollars from former business partners

    Lawsuit claims Harvey Whittemore embezzled millions of dollars from former business partners

    Written by Martha Bellisle, Jan. 27, 2012

    The former business partners of Harvey Whittemore, a well-known Nevada lobbyist, land-developer, businessman and lawyer, filed a civil lawsuit Friday claiming he embezzled millions of dollars from the Wingfield company they ran together and misappropriated corporate funds and assets.

    The suit,…

    Continue

    Posted by Moderator on January 28, 2012 at 10:30am — 1 Comment

    On a Personal Note: Are Things Changing?

    Are Things Changing?

    When asked by a new acquaintance this week "How are you?", I replied, to keep things simple, "On the road to recovery from chronic fatigue…

    Continue

    Posted by Dan Moricoli on January 7, 2012 at 10:00am — 5 Comments

    Civil Court Rules Against Chronic Fatigue Syndrome Researcher

    http://news.sciencemag.org/scienceinsider/2011/12/civil-court-rules-against-chronic.html?ref=hp

     

    Civil Court Rules Against Chronic Fatigue Syndrome Researcher

    by Jon Cohen on 20 December 2011, 4:30 PM

    Embattled researcher Judy Mikovits lost an important round in court yesterday in a civil suit…

    Continue

    Posted by Moderator on December 24, 2011 at 5:30am — 3 Comments

    Photos

    Loading…
     
     
     

    Events

    © 2012   Created by Dan Moricoli.

    Badges  |  Report an Issue  |  Terms of Service