About Us

The ME-CFSCommunity is a creation of cfsKnowledgeCenter, Inc., a member supported, Not for Profit, 501 (c) 3 organization.

Our members may come from many countries but we are united in our determination to learn from, and to assist, one another in moving beyond the obstacles imposed upon us by our illness.

Our Membership Spans the Globe

Our members reside in:
Algeria, Antigua and Barbuda, Argentina, Armenia, Australia, Austria, Bahamas, Belgium, Belize, Brazil, Bulgaria, Canada, Cayman Islands, China, Christmas Island, Columbia, Czech Republic, Denmark, Egypt, Finland, France, Germany, GreeceGreenland, Iceland, India, Indonesia, Ireland, Iran, Israel, Italy, Jamaica, Japan, Kenya, Lithuania, Malta, Malaysia, Mexico, Myanmar, Netherlands, New Zealand, Nicaragua, Northern Ireland, Norway, Pakistan, Philippines, Poland, Portugal, Puerto Rico, Romania, Russian Federation, Singapore, Slovakia, South Africa, Spain, Sweden, Switzerland, Taiwan, Thailand, Turkey, Ukraine, United Kingdom, United States and Venezuela.


Latest Activity

Alyson Knop replied to Elizabeth Story's discussion Intermittent Symptoms
"Hi again, Elizabeth-- I realized I didn't clarify that yes, the resting for 10 mn out of every hour is either meant as one preventative measure during times when one is feeling well or for people who are fairly "high-functioning," as…"
Alyson Knop replied to Elizabeth Story's discussion Intermittent Symptoms
"Hi, Elizabeth-- I'm so sorry about the migraines and  possible medication problems, and I also understand the difficulty of not always knowing what's the illness and what's a med side-effect.(I'm having that today--not sure…"
Elizabeth Story replied to Elizabeth Story's discussion Intermittent Symptoms
"Sorry it's taken me so long to get back to you. Migraine issues continue and I feel like I'm having medication problems, although I'm just taking the same things I've been taking for awhile. Maybe the fatigue is back and…"
Feb 13
Alyson Knop replied to Elizabeth Story's discussion Intermittent Symptoms
"Hi, Elizabeth, I'm sorry it's taken me so long to write. Experimenting with meds often knocks me out. How are you doing? Are the migraines better? Everything you describe to me--the migraines; the crashes in which you can't read,…"
Feb 7
Nathan Pearce posted a blog post

Organic Lawn Care Tactics For This Spring

Many people question the claims of methods easy an aquaponics system is to jog. When people think of growing fish, they often think about filtration systems, cleaning the tank and regularly replacing the normal water. With traditional aquaculture and aquariums, here is the case, but not with aquaponics.You'll require flat sort of tray with holes associated with bottom, some quality topsoil which is available very cheaply, an…See More
Feb 5
Elizabeth Story replied to Elizabeth Story's discussion Intermittent Symptoms
"Thanks-- migraines seem to be subsiding.  Thanks for the compliment on the painting! That one took a long time (too many leaves), but it was nice to be able to fill in a couple leaves here and there when I wasn't up to doing much else. I…"
Feb 2
Alyson Knop replied to Elizabeth Story's discussion Intermittent Symptoms
"Hi, Elizabeth, I'm really sorry you've been suffering with migraines. Those are awful, and I feel lucky that I've had them just a few times in my life, though I seem to get stabbing headaches more often now with my fatigue. I hope…"
Feb 1
Elizabeth Story replied to Elizabeth Story's discussion Intermittent Symptoms
"Hi Alison, Sorry for the slow response. It's been a rough few days of migraine issues. That's great that you are able to engage in some activities you weren't able to do as a child. I can see how pool accessibility could be a problem.…"
Jan 31
Jayne replied to Wendy B's discussion Has research confirmed that CFS is a mitochondrial illness? or is it still just hypothesized?
"This has been my experience as well, that post-exertional malaise is accompanied by and possibly attributable to, a buildup of lactic acid in the blood from over-exertion (mainly). Maintaining acid-buffering minerals like calcium & magnesium…"
Jan 25
Jayne replied to Aileen's discussion Welcome Canucks! Introduce Yourself Here in the group All Canada Group
"I've watched everything about/from Jennifer Brea too. So intense! My husband says he'll watch it with me 'sometime'. Just now my father's dying and my next contracted book is behind schedule so I'm barely able to keep…"
Jan 25
Alyson Knop replied to Elizabeth Story's discussion Intermittent Symptoms
"Hi, Elizabeth, It must be so frustrating to have been an athlete (I consider anyone who runs regularly to be an athlete, whether they’ve competed or not) and now to find it hard just to walk around a store. I hope you’re eventually able…"
Jan 25
Elizabeth Story replied to Elizabeth Story's discussion Intermittent Symptoms
"Hi Alison, Trying to write the liner notes sounds like a really frustrating experience. I know when my fatigue was worse and I tried to do some more mentally stimulating things that I used to enjoy it often didn't turn out well. I tried doing…"
Jan 23
Alyson Knop replied to Elizabeth Story's discussion Intermittent Symptoms
"I meant to say in my last post that I'm really sorry you got no help from the Dept of Vocational Rehab because you don't have a diagnosis. Knowing the bureaucratic system of agencies like that, I'm not surprised, but it royally sucks…"
Jan 22
Alyson Knop replied to Elizabeth Story's discussion Intermittent Symptoms
"Hi, Elizabeth, I'm glad you feel like you're starting to come out of your last flare, but I can understand that that comes also with being sort of overwhelmed about getting back to your work and all that you were doing before your body…"
Jan 21
Patti Jackson replied to Aileen's discussion Welcome Canucks! Introduce Yourself Here in the group All Canada Group
"Hi Jayne! First, congratulations for being determined to claw your way back to some semblance of a life and being able to write!  That is a huge goal to achieve!  I receive no medical care at all.  Like so many of us.  Last year…"
Jan 20
Elizabeth Story replied to Elizabeth Story's discussion Intermittent Symptoms
"Thanks so much for thinking of me! I'm really happy you have a doctor who you can trust and who is up to date on research. I've been thinking a lot about what to bring to my appointment too. Because my symptoms are intermittent I…"
Jan 20

Welcome . . .

The ME-CFSCommunity is reserved for those individuals who wish to learn from, and directly communicate with, those who are afflicted with ME/CFS. Access to the various sections and features of the ME-CFSCommunity beyond the Main Page is limited to registered members only to protect their privacy. 

To learn about severe fatigue, ME/CFS (chronic fatigue syndrome) or fibromyalgia visit:, an open access website.

The mission of the ME-CFSCommunity is to help members move beyond the challenges they face. We seek to facilitate the free and open exchange of information on ME/CFS, fibromyalgia and related illnesses among those who know the most about the true impact of these afflictions.

Membership is FREE and PRIVATE. Our member roster is not shared with any other organization nor used for any commercial purpose. 

You are welcome to join us. You'll find us warm and welcoming.

Our community interesting, informative and supporting.


Check out InTheNews for daily updates on the latest medical news releases and other news items which may be of particular interest.


QUESTION: How can a $10 investment pay off in millions for desperately needed ME/CFS research.

ANSWER: Get a large segment of the general public to buy something they want, at a very low cost, and put every penny of profit into ME/CFS research.

EXPLANATION: The C.D.C. and other experts tells us there are over 145 million adults in the U.S. alone who suffer with an addiction, 107 million more with a chronic disease, 88 million who are obese, 40 million who are co-dependent, 34 million with osteoarthritis, 30 million who suffer with anxiety, 25 million with diabetes, 24 million with PTSD, 15 million who suffer with depression as well as 1.3 million with ME/CFS.

Take just a few minutes to watch the videos at Personal Stories and you’ll see and hear for yourself that these challenges can be greatly reduced, if not eliminated, with proper guidance.

If only 0.5 of 1% of the people with the challenges listed above spend just $3.98 to begin to significantly improve their health and well being, $6,827,936 will have been raised for ME/CFS research.

In fact, everyone has more than one personal challenge which can be eased or eliminated entirely through yoga which is why multiple purchases are the norm and significantly more than $6 million dollars for ME/CFS research is likely to be generated. This is the whole idea behind the innovative ME/CFS research fundraising website

Three things you can do to help us help you:   

  1. Check out our ME/CFS research fundraising website yourself. Do it now, you’ll be both surprised by the stories and really pleased if you try at least one of the sessions yourself. 
  2. Encourage your family and friends to take a few minutes to watch the videos at Personal Stories and ask them to Like them for Facebook while they are at it.
  3. Help us to raise the $25,000 we need to initiate a full scale marketing campaign to our target markets to turn the small stream of money already started in a river to generate the $6 million, or more, for ME/CFS research.

If each of the 5,213 members of the ME-CFSCommunity donate just $5 today, we’ll reach the $25,000 goal in a heartbeat. The fact is, however, that not everyone can or will. So, we are asking you to donate $10, or more as you can afford, and please, do it now, simply click on the PayPal logo or link below.

$10 to generate $6 million, or more, for ME/CFS research?  Now, that’s a good investment!

This ground breaking video series Exercise & ME/CFS is now available online for immediate viewing for only $3.98 or it may be viewed AND downloaded in its entirety for only $9.98.

To preview, or for immediate downloading, click on the image above or HERE.

"The series of exercise videos have been transformational.  Prior to viewing these videos, my attempts to exercise were basically a disaster. 

I would try to do a little strength training and I would inevitably trigger a crash.  But learning about VO2 max testing and how to modify my exercises to keep my heart rate within my safe zone have been game changers for me! 

Since starting on this exercise protocol I have lost 25 pounds, and am now stronger than many of my non-cfs friends!!! Paula D., Washington D.C

(Firefox & Mozilla browsers may encounter problems linking)

Instead of asking for donations or grants, maybe, just maybe, the money can be raised from people who only want, or can only afford, to take care of themselves . . . and in the process of taking care of themselves, the profits go to fund research for ME/CFS.

That's the basic idea behind the video series "Yoga On the Path Towards Wellness".

Want to learn more? Go to While there, check out the Your Stories section.

Silly idea? Maybe . . . maybe not $1,000,000 or more annually for ME/CFS research seems doable . . .  on paper at least. 

Please, go to, check it out and ten tell your friends and neighbors to check it out as well.

And by the way, please "Like" the website and videos while you're there. With a little help, this idea just might pay off for us.


What have you learned from your affliction with ME/CFS and/or fibromyalgia that you'd like to share with others?

A new section has been created at Tips for Life w/ ME/CFS. Read 10 tips from Dr Hyman and two others who have made significant progress in alleviating their symptoms from ME/CFS.

Join in with the others to comment or add tips of your own.


We've re-organized our Continuing News Stories by giving each of the following articles their own page. You'll find the links to each within the InTheNews section as well as those immediately shown below.

Clear insights and actionable information from widely recognized authorities are the hallmarks of the Expert Assistance series of videos produced specifically for those afflicted with ME/CFS and related illnesses.

The entire Expert Assistance video series is now available AT NO CHARGE.

View them as many times as you like. Tell your friends, and physician, about them. Both patients and medical professionals will find them an excellent, and frequently referenced, source of valuable information.

When viewing the series, we hope you will also take a moment to consider their value to your pocketbook as well as your path towards wellness. We hope that you will respond in kind and support this effort to provide you with Expert Assistance with a contribution to keep the community up and running and able to continue to produce these ground breaking videos for you.

The ME/CFS & FM Patient Survey is a blind (names withheld) research study to gather data from around the world from those afflicted with ME/CFS & FM to further research into the disease. Everyone who is afflicted with ME/CFS or FM is encouraged to take the survey.

Over 450 people have completed the study thus far. Have You? It's important that we assist the research on ME/CFS in every way we can. Please help, it takes just a few minutes of your time.
Learn more about and take the ME/CFS & FM Patient Survey


The ME/CFS Case Definition Survey is a standardized guide for clinicians and research scientists for the evaluation of the impact of various specific symptoms upon those afflicted. It is presented in conjunction with the ME/CFS research team at the University of Miami.

Dr Nancy Klimas is delighted that so far over 800 people from around the world have taken the survey. Won't you please join them?

Learn more about and take the Case Definition Survey


Contributions are sorely needed to support this website. There is no benefactor or foundation supporting us. Our ability to survive rests with the individual members of the community.

Won't you please Help Us to Help You?

A click on the PayPal icon below and a willingness to help yourself and others is all it takes.

Top of Form



Active Conversations



    You are disconnected from chat. Connect to join the chat.

    Suspended From Chat

    Sign up to chat on

    Sign Up


    Best Community 10 Replies

    Started by BETHANY YAGCI in General Discussion. Last reply by grace skellan Dec 3, 2017.

    dating ME/CFS 148 Replies

    Started by Sarah G in Personal Relationships & ME/CFS. Last reply by Chancie Thomas Dustin Jul 1, 2016.

    Spirituality and Illness 177 Replies

    Started by Dan Moricoli in General Discussion. Last reply by Howard Savage Apr 10, 2016.

    Caregivers 51 Replies

    Started by Dan Moricoli in General Discussion. Last reply by Anna Carla May 18, 2013.

    Thankfulness 98 Replies

    Started by Rachel in General Discussion. Last reply by Amy Oct 16, 2011.

    Blog Posts

    Katherine talks about 15 years with chronic fatigue, her sense of identity and suicide

    This video was made with the express purpose of distributing it as widely as possible around the world via the Internet to reach as many of the millions of ME/CFS sufferers as possible who have yet to be properly diagnosed.

    Katherine has had ME/CFS for over 15 years, for four of those years she was bed ridden. Katherine is very open and frank about her condition and the affect its had on her mind, body and spirit.

    She recently sat before a camera to express her views. Her use…


    Posted by Dan Moricoli on October 24, 2013 at 11:30am — 7 Comments

    Yoga & ME/CFS and Yoga & Fibromyalgia - An Update


    The Meditation in Motion Video Series©: "Yoga On the Path Towards Wellness©" with Priyanka Shanbag is now about to be released.

    The series is designed to increase general awareness…


    Posted by Dan Moricoli on June 3, 2012 at 9:00am — 110 Comments

    Comment on Mikovits and the Fallout From Fatigue Syndrome Retraction Is Wide in the New York Times

    From The New York Times


    Fallout From Fatigue Syndrome Retraction Is Wide



    When scientists reported in 2009 that a little-known mouse retrovirus was present in a large number of people with chronic fatigue syndrome, suggesting a possible cause of the condition, the news made international…


    Posted by Moderator on February 7, 2012 at 5:00am — 3 Comments

    Lawsuit claims Harvey Whittemore embezzled millions of dollars from former business partners

    Lawsuit claims Harvey Whittemore embezzled millions of dollars from former business partners

    Written by Martha Bellisle, Jan. 27, 2012

    The former business partners of Harvey Whittemore, a well-known Nevada lobbyist, land-developer, businessman and lawyer, filed a civil lawsuit Friday claiming he embezzled millions of dollars from the Wingfield company they ran together and misappropriated corporate funds and assets.

    The suit,…


    Posted by Moderator on January 28, 2012 at 10:30am — 2 Comments

    On a Personal Note: Are Things Changing?

    Are Things Changing?

    When asked by a new acquaintance this week "How are you?", I replied, to keep things simple, "On the road to recovery from chronic fatigue…


    Posted by Dan Moricoli on January 7, 2012 at 10:00am — 13 Comments


    © 2018   Created by Dan Moricoli.   Powered by

    Badges  |  Report an Issue  |  Terms of Service