The ME-CFSCommunity is a private community reserved for those individuals from around the world who wish to learn from, and directly communicate with, those who are affected by ME/CFS and related conditions.
Access to this website beyond the Home page is limited to MEMBERS ONLY to protect their privacy.
The mission of the ME-CFSCommunity website is to help members move beyond the challenges of the disease. To facilitate the free and open exchange of information between those who know the most about the true impact of the affliction and are the most affected by it.
Membership in our ME-CFSCommunity is FREE and VERY PRIVATE. Our membership roster is not shared with any other organization nor used for any commercial purpose.
To learn more about servere fatigue, ME/CFS (aka: chronic fatigue syndrome) and related conditions please refer to www.cfsKnowledgeCenter.com, our open-access website.
You are most welcome to join us. You'll find us warm and understanding.
You’ll find us interesting, informative and supportive.
The total cost of the National Institute of Health ME/CFS projects for fiscal year 2017 was a paltry $7 million. This, in spite of the fact that ME/CFS afflicts almost as many people in the U.S. as prostate cancer, multiple sclerosis, breast cancer and muscular dystrophy which collectively receive $1,168,000,000 in N.I.H. funding. Clearly, we need to demand more of our government . . . but . . .
Instead of asking for donations or grants, maybe, just maybe, the money can be raised from people who only want, or can only afford, to take care of themselves . . . and in the process of taking care of themselves, the profits go to fund research for ME/CFS.
That's the basic idea behind the video series "Yoga On the Path Towards Wellness".
Want to learn more? Go to YogaOnthePath.com. While there, check out the Your Stories section.
Silly idea? Maybe, but $1,000,000 or more annually for ME/CFS research seems doable. Ask Dr. Nancy Klimas what an extra $1 million for research would mean to her.
Please, go to YogaOnthePath.com, check it out and then tell your friends and neighbors to check it out as well. And by the way, please "Like" the website and videos while you're there. With a little help, this idea just might pay off for us.
I have had ME/CFS since May, 2006 when I had a sudden onset of the disease following a bout of stomach flu. For the first few years I was virtually a prisoner in my home. The overwhelming crashes I suffered often lasted for weeks and sometimes were so bad that I was nearly comatose as you might note in the video below from that period.
In my lucid moments I searched the Internet for help since my doctors were of no assistance in even understanding what was going on in my body. My failure to find anything of value on the Internet led me in 2008 to form the nonprofit organization cfsKnowledgeCenter and begin to build websites devoted to helping others around the world learn about the disease and what they can do with the challenges they face.
Today, thanks largely to Dr. Nancy Klimas, I am virtually recovered and lead a very normal life although at age 75 I don’t run very far or very fast.
As my age creeps up on me I have joined with my long term friend, Cort Johnson, to coordinate our efforts to serve those of us around the world who are affected by ME/CFS.
If you care to help us a little along the way, please consider adding whatever you can afford in financial support to Help Us Help You.
Find members from around the world while retaining your own privacy.
Opt In or Opt Out, it is totally up to you.
His blog on is a must-read for anyone (physicians as well as patients and others) who are affected by ME/CFS and related conditions.
A super active forum covering a wide range of topics of interest for anyone interested in any aspect of ME/CFS and related conditions.