ME-CFSCommunity.com

About Us

The ME-CFSCommunity is a creation of cfsKnowledgeCenter, Inc., a member supported, Not for Profit, 501 (c) 3 organization.

Our members may come from many countries but we are united in our determination to learn from, and to assist, one another in moving beyond the obstacles imposed upon us by our illness.

Our Membership Spans the Globe


Our members reside in:
Algeria, Antigua and Barbuda, Argentina, Armenia, Australia, Austria, Bahamas, Belgium, Belize, Brazil, Bulgaria, Canada, Cayman Islands, China, Christmas Island, Columbia, Czech Republic, Denmark, Egypt, Finland, France, Germany, GreeceGreenland, Iceland, India, Indonesia, Ireland, Iran, Israel, Italy, Jamaica, Japan, Kenya, Lithuania, Malta, Malaysia, Mexico, Myanmar, Netherlands, New Zealand, Nicaragua, Northern Ireland, Norway, Pakistan, Philippines, Poland, Portugal, Puerto Rico, Romania, Russian Federation, Singapore, Slovakia, South Africa, Spain, Sweden, Switzerland, Taiwan, Thailand, Turkey, Ukraine, United Kingdom, United States and Venezuela.

Members

Latest Activity

Tina Aguirre replied to emilee rutledge's discussion Greetings
"I was originally dx'ed with FM by my G.P. He, at this time, doesn't think that there is a difference. (I will be educating him. We have a good enough relationship that we can that) Went to a pain Dr. Found out most are also…"
yesterday
emilee rutledge replied to emilee rutledge's discussion Greetings
"Hi Tina, Thanks! Yeah, I was thinking after the New year when things aren't so chaotic. I've been to the doctor about depression. I think it would be good to get some blood tests done at the very least.  "
yesterday
Tina Aguirre replied to emilee rutledge's discussion Greetings
"Hi Emilee,   First things first. You need to get yourself to a Dr. if for no other reason than the depression. Depression can very easily not only cause disturbed sleep patterns but physical pain as well. Disturbed sleep patterns can cause…"
yesterday
Tina Aguirre replied to Glen Kirkpatrick's discussion I'm anew member/exercise/writing:
"Hi Glen,  Thank you for sharing. You have certainly been through the mill to put it lightly. You must be a very strong person with a strong mind. It's great that you know your body well enough to know when not to exercise.   …"
yesterday
Tina Aguirre updated their profile
yesterday
Andy Kokuu McLellan was featured
yesterday
Dan Moricoli posted a blog post

The Unbreakable by Laura Hillenbrand, A Review from the New York Times

http://www.nytimes.com/2014/12/21/magazine/the-unbreakable-laura-hillenbrand.htmlThe Unbreakable by Laura HillenbrandBy WIL S. HYLTON DEC. 18, 2014Late one afternoon in the summer of 2004, an aviation…See More
yesterday
Andy Kokuu McLellan replied to Dan Moricoli's discussion Spirituality and Illness
"Hi allAfter working with mindfulness practices to deal with pain, I have been a Buddhist for over a decade, taking Jukai (lay ordination) in Zen Buddhism earlier this year. Illness forces us to spend large periods of time alone and in silence and…"
yesterday
Lauren Moore commented on Moderator's video
Thumbnail

Biomarkers for ME/CFS

"After having Fibro and ME/CFS for forty years I would never be able to do this exercise therapy without severe repercussions possibly while taking the test.  I wish they had this science 20-25 years ago before my becoming severely…"
yesterday
emilee rutledge posted a discussion

Greetings

Hi all, I hope its' kosher to add a discussion to introduce myself. I believe I have CFS or something similar to it and would welcome some insight... I also have pretty severe environmental sensitivities (MCS) so the main source of my fatigue is not clear.  I've been meaning to see if I can get an official diagnosis but avoiding the doc since they haven't done much for me in the past and shocker- I'm to tired to really care :)  I've had issues with chronic fatigue  since my early 20s, now 32.…See More
Thursday
Kimberly Kordell updated their profile
Wednesday
Mary Ann Kindel replied to Mary Ann Kindel's discussion ***Now Is The Time for a National PR Campaign for ME/CFS***
"National PR Campaign for M.E. Starting Soon!   Good news! Since we have reached our first fundraising goal of $5000, we will be starting our national public relations campaign with our PR firm, Crowds On Demand, in January.   We need to…"
Tuesday
Profile IconTina Aguirre and aidan maguire were featured
Dec 13
Tina Aguirre replied to Scarlet56's discussion Pins and Needles, Stinging all over the body, left side of face also...does anyone have this??
"Hi,  I just now joined this site and was getting familiar with it when I saw this. What i have been told is that the nerves for the skin are on rapid fire. Burning, stinging, needles, electric shock, insane itching, crawling feeling and a few…"
Dec 13
Lisa Johnson updated their profile
Dec 13
Bill Brassil updated their profile
Dec 13
 

Welcome . . .

Should you only be interested in learning about severe fatigue, chronic fatigue syndrome (ME/CFS) or fibromyalgia we invite you to visit: www.cfsknowledgecenter.com. It is an open access website.

The ME-CFSCommunity is reserved for those individuals who wish to learn from, and directly communicate with those who are afflicted with ME/CFS. Access to the various sections and features of the ME-CFSCommunity beyond the Main Page is limited to registered members only to protect their privacy. 

Our mission is to help members move beyond the obstacles imposed upon them. We seek to facilitate the free and open exchange of information on ME/CFS, fibromyalgia and related illnesses among those who know the most about the true impact of these afflictions.

Members easily communicate with one another individually, or in groups using FREE Live Video Chat, Instant Text Messaging, Blogs and Forums as well as other features. 

Membership is FREE and PRIVATE. Our member roster is held in the strictest confidence. It is not shared with any other organization nor used for any commercial purpose. 

You are welcome to join us. You'll find us warm and welcoming. Our community interesting, informative and supporting.

Your support, particularly at this time, is critical to the continuation of our efforts to serve you. Timely updates on the latest ME/CFS & fibro research, special features such as the new video series below, and more to help you ease the symptoms of ME/CFS & fibro and allow you to lead a more balanced life.

If each of our members gave just $5 once a year we'd be OK. Just a bit more than a cup of coffee is all we need from each you. Won't you please, click on the PayPal logo or link below right now.

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=M6YMPECUBDV4U

A new, gentle yoga video series to help you ease the symptoms of ME/CFS and fibromyalgia as well as regain your sense of well being. The series includes:

  - View or download the Seven Seated Practice Sessions from 10 to 30 minutes minutes each from just $1.98 HERE.

  - View or dowload the Three Wheelchair or other Chair Practice Sessions of 12 to 20 minutes each from just $1.98 HERE.

  - View or download the Two Bedbound, Sofa or Recliner Practice Sessions of 12 & 15 minutes each from just $1.98 HERE.

If you prefer to have DVDs of any one or more of the series email your request to info (at) YogaOnthePath.com.

Can yoga really help those of us with ME/CFS? This video explains how and why you, even with ME/CFS or fibromyalgia, can realize the full benefits of a proper yoga practice.

Learn more about healing yoga in our YogaOnthePath group or go to our sister website for ME/CFS research funding at YogaOnthePath.com.

If you can spare more than the cost of a cup of coffee to help keep this website alive and serving you, we'd like to thank you in a very special way.

For a donation of just $40, or more as you can spare, you'll receive (with FREE WORLDWIDE SHIPPING) the entire Seated Yoga Series. View a preview of both below.

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=M6YMPECUBDV4U

For a donation of just $20, or more as you can spare, you'll receive (with FREE WORLDWIDE SHIPPING) your choice of either the entire Reclining Yoga Series or the entire Wheelchair Yoga Series. View a preview of both below.

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=M6YMPECUBDV4U

Check out InTheNews for daily updates on the latest medical news releases and other news items which may be of particular interest.

New York Times review of Laura Hillenbrand's new book "Unbroken" in our Blog section where you can add your own comments

Click on art above or go to: http://www.youtube.com/user/MECFSCommunity

All Profits to ME/CFS Research & Services

YogaOnthePath.com was developed to raise money for ME/CFS research and in-home services. The website features personal stores of people with debilitating disorders (including Katherine's, far left above, who has ME/CFS) who are advancing their recovery through the proper practice of yoga.

The website also features instructional videos for sale by renown healing instructors. The YouTube channel was created to help drive traffic to YogaOnthePath.com. Please take a moment and visit both sites. Click on the photo above to go to the YouTube channel.

The entire ground breaking video series is now available online for viewing or downloading in its entirety. The one hour video is also now available in DVD format (shipping worldwide included) for only $19.99. All profits are used to support this website.

To preview the series, click on the image above or click HERE. To receive a DVD copy of the series click on the PayPal logo or link below.

To see previews of the other videos available check the listings below the InTheNews listings.

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=PCJ8HVT5R9XML

Loving Kindness, A Healing Journey for CFS has won wide acclaim from around the world. This video, also produced by cfsKnowledgeCenter features Tracey O'Hara leading a very different healing modality to address the body, mind and spirit. To view a preview, click HERE.

A DVD of Loving Kindness, or any other of the DVDs shown below, will be sent to each person who donates $25, or more, to support this website. To purchase, click on the photo above or see the Special Offer below.

A Gentle Beginning was produced by cfsKnowledgeCenter specifically for ME/CFS sufferers. It features the nationally known Hatha yoga instructor Priyanka Shanbag in a very gentle, and brief, seated practice session. It can be practiced on the floor or even in bed. View a preview HERE.

Short n Sweet is a complete, yet brief yoga practice session of just 15 minutes for those with limited endurance and physical mobility. It's a perfect starter practice session for those who are not bed bound and want to begin to adopt a gentle yoga practice on their path towards wellness. View a preview HERE.

Easing In is a slightly more challenging yoga practice session of 24 minutes duration. It is designed for those who have the strength and endurance to get about however carefully. Priyanka's soothing voice and affirmations will gently help you further along your path towards wellness. View a preview HERE.

As far too many of us have experienced, often seeing a doctor who is uninformed about ME/CFS is to be diagnosed as depressed and be prescribed heavy medications. This heavy handed misdiagnosis hides a sad truth. A common result, not cause, of our condition is one form or another of depression.

Into the Light is a practice created specifically to help heal those of us who experience some form of depression. To view a brief video of Katherine, a member of our community, talk about Tracey's sessions, click HERE.

Whether you experience any form of depression or not, you're sure to find that this wonderful video will make you feel better and more confident in dealing with life's challenges.

A single copy of a DVD of any of the DVDs will be sent to each person who donates $25, or more, to support this website. No matter where in the world they live.

In appreciation for a donation of $65, or more, any three videos will be sent, postage paid, anywhere in the world.

In appreciation for a gift of $100, or more, all five of the videos will be sent, post paid, anywhere in the world.

Please indicate your choice of videos in the PayPal check "Special Instructions" message when making your donation or send an email with your choices to info@cfsknowledgecenter.com.

To make a donation to support our ME-CFSCommunity, please click on the PayPal logo below or send a personal check or money order to: cfsKnowledgeCenter, Post Office Box 334, West Palm Beach, FL 33402, USA

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=PCJ8HVT5R9XML

 Instead of asking for donations or grants, maybe, just maybe, the money can be raised from people who only want, or can only afford, to take care of themselves . . . and in the process of taking care of themselves, the profits go to fund research for ME/CFS.

That's the basic idea behind the video series "Yoga On the Path Towards Wellness".

Want to learn more? Go to YogaOnthePath.com. While there, check out the Your Stories section.

Silly idea? Maybe . . . maybe not $1,000,000 or more annually for ME/CFS research seems doable . . .  on paper at least. 

Shouldn't you tell your friends and neighbors to check it out as well?

And by the way, please "Like" the website and videos while you're there. With a little help, this idea just might pay off for us.

What have you learned from your affliction with ME/CFS and/or fibromyalgia that you'd like to share with others?

A new section has been created at Tips for Life w/ ME/CFS. Read 10 tips from Dr Hyman and two others who have made significant progress in alleviating their symptoms from ME/CFS.

Join in with the others to comment or add tips of your own.

 

We've re-organized our Continuing News Stories by giving each of the following articles their own page. You'll find the links to each within the InTheNews section as well as those immediately shown below.

Clear insights and actionable information from widely recognized authorities are the hallmarks of the Expert Assistance series of videos produced specifically for those afflicted with ME/CFS and related illnesses.

The entire Expert Assistance video series is now available AT NO CHARGE.

View them as many times as you like. Tell your friends, and physician, about them. Both patients and medical professionals will find them an excellent, and frequently referenced, source of valuable information.

When viewing the series, we hope you will also take a moment to consider their value to your pocketbook as well as your path towards wellness. We hope that you will respond in kind and support this effort to provide you with Expert Assistance with a contribution to keep the community up and running and able to continue to produce these ground breaking videos for you.

The ME/CFS & FM Patient Survey is a blind (names withheld) research study to gather data from around the world from those afflicted with ME/CFS & FM to further research into the disease. Everyone who is afflicted with ME/CFS or FM is encouraged to take the survey.

Over 450 people have completed the study thus far. Have You? It's important that we assist the research on ME/CFS in every way we can. Please help, it takes just a few minutes of your time.
Learn more about and take the ME/CFS & FM Patient Survey

 

The ME/CFS Case Definition Survey is a standardized guide for clinicians and research scientists for the evaluation of the impact of various specific symptoms upon those afflicted. It is presented in conjunction with the ME/CFS research team at the University of Miami.

Dr Nancy Klimas is delighted that so far over 800 people from around the world have taken the survey. Won't you please join them?


Learn more about and take the Case Definition Survey

 

Contributions are sorely needed to support this website. There is no benefactor or foundation supporting us. Our ability to survive rests with the individual members of the community.

Won't you please Help Us to Help You?

A click on the PayPal icon below and a willingness to help yourself and others is all it takes. Those who prefer not to make payments online may send a personal check or money order to cfsKnowledgeCenter, Post Office Box 334, West Palm Beach, FL 33402

 https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=PCJ8HVT5R9XML

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    Best Community 8 Replies

    Started by BETHANY YAGCI in General Discussion. Last reply by Polly Bentley May 18, 2013.

    dating ME/CFS 136 Replies

    Started by Sarah G in Personal Relationships & ME/CFS. Last reply by Polly Bentley Dec 27, 2013.

    Spirituality and Illness 175 Replies

    Started by Dan Moricoli in General Discussion. Last reply by Andy Kokuu McLellan yesterday.

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    Blog Posts

    Katherine talks about 15 years with chronic fatigue, her sense of identity and suicide

    This video was made with the express purpose of distributing it as widely as possible around the world via the Internet to reach as many of the millions of ME/CFS sufferers as possible who have yet to be properly diagnosed.

    Katherine has had ME/CFS for over 15 years, for four of those years she was bed ridden. Katherine is very open and frank about her condition and the affect its had on her mind, body and spirit.

    She recently sat before a camera to express her views. Her use…

    Continue

    Posted by Dan Moricoli on October 24, 2013 at 11:30am — 7 Comments

    Yoga & ME/CFS and Yoga & Fibromyalgia - An Update

    .

    The Meditation in Motion Video Series©: "Yoga On the Path Towards Wellness©" with Priyanka Shanbag is now about to be released.

    The series is designed to increase general awareness…

    Continue

    Posted by Dan Moricoli on June 3, 2012 at 9:00am — 110 Comments

    Comment on Mikovits and the Fallout From Fatigue Syndrome Retraction Is Wide in the New York Times

    From The New York Times

    .

    Fallout From Fatigue Syndrome Retraction Is Wide

    By DAVID TULLER

          

    When scientists reported in 2009 that a little-known mouse retrovirus was present in a large number of people with chronic fatigue syndrome, suggesting a possible cause of the condition, the news made international…

    Continue

    Posted by Moderator on February 7, 2012 at 5:00am — 2 Comments

    Lawsuit claims Harvey Whittemore embezzled millions of dollars from former business partners

    Lawsuit claims Harvey Whittemore embezzled millions of dollars from former business partners

    Written by Martha Bellisle, Jan. 27, 2012

    The former business partners of Harvey Whittemore, a well-known Nevada lobbyist, land-developer, businessman and lawyer, filed a civil lawsuit Friday claiming he embezzled millions of dollars from the Wingfield company they ran together and misappropriated corporate funds and assets.

    The suit,…

    Continue

    Posted by Moderator on January 28, 2012 at 10:30am — 2 Comments

    On a Personal Note: Are Things Changing?

    Are Things Changing?

    When asked by a new acquaintance this week "How are you?", I replied, to keep things simple, "On the road to recovery from chronic fatigue…

    Continue

    Posted by Dan Moricoli on January 7, 2012 at 10:00am — 13 Comments

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